Something Worth Fighting For: Life Goes On

When you wish you didn’t have to be so strong

Completely unfazed and blissfully happy, my 5 year old son just got taken back for his 3rd surgery of his short life. He knows what’s about to happen, we’ve talked through it all, and he’s ready for it.

An hour and a half procedure to close 2, possibly 3 hernias.

He doesn’t handle anesthesia well, he’s a high risk for complications because of his genetic disorder (a type of muscular dystrophy), and it leaves me feeling nervous.

This is one that doesn’t get easier. Watching your kid get wheeled away in a bed headed into a procedure isn’t something I can get used to.

I’ve had 12 or 13 major orthopedic surgeries myself. So maybe some of my own trauma shows up on these days.

Surgery is part of life for me. While my boys don’t have the same orthopedic deformities that I had (have), they have their struggles. And will always need a higher level of medical care than I wish were necessary.

Phoenix doesn’t handle anesthesia well. It’s something we go through every time with him. And it’s an outcome I’m terrified of, because I know how things can go wrong.

Mix in a good bit of respiratory weakness….

So we wait.

We stare at the board.

It still says procedure.

I’m on edge…but I know he’ll be okay.

We’ll always be okay.

He’s earned himself a pizza for dinner tonight for sure…..and if he’s not up for it today?

Pizza for breakfast tomorrow.

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