Monday is here as scheduled, and once again, it promises to be a long one.
Early this morning, Atlas has his first appointment with a new kind of therapy. It’s called Vital Stim, and basically, it’s where they put electrodes on his neck to assist him with swallowing, and to hopefully help him strengthen those muscles so he isn’t choking and aspirating all the time.
Right now, he has to drink thickened liquids, and can’t have normal water, because he’ll aspirate on it. He’s had issues with swallowing for a while now, but it actually got significantly worse over the past few months, so now this is kind of like a last resort before we consider a feeding tube.
I’m anxious but excited for this appointment, they’re really hopeful that it will end up helping. It’s a short term, but intensive kind of therapy, so we’ll see! Certainly nothing to lose from trying.
My oldest son is home from school again today, and that alone brings the promise of a….fun…..day. Mondays are the day I usually pick him up from school early for OT, so I guess it’s just less driving for me. All 3 boys have therapy today, as they do every Monday. Atlas is the lucky one with 2 different kinds today, the vital stim this morning and then PT this afternoon.
And to end the day, I have therapy. Usually, that’s a great thing, and something that I look forward to…but my mom is coming with me tonight. And, if it goes anything like how it went when my dad came a few weeks ago? I’m in for it.
I do think she will be a bit more kind with her word choice of describing words towards me, but honestly, I have no idea. It will be interesting, at the very least.
Last night went better than I feared it would, although I really need to get my drinking more under control. My husband and I seem to be back on track…or at least perhaps that’s just what we’re going to tell ourselves for now. Either way, we seem to be good.
Today will be a long, busy, and interesting day. As most Mondays tend to be.
But I’m embracing it and going with the flow. Even though I am a bit terrified of how tonight will go.
Here’s a picture of the tiny, expensive little culprit. I do love him.
