death

When your irrational worry is justified.

My son is sick. His birthday is in exactly 2 weeks. He’ll be 3 years old. (And no, I’m not okay with it.) He is the unfortunate recipient of a horrible genetic disorder, along with his older brother, gifted by none other than myself. The way genetic disorders work in families, each member can experience …

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Your heart is bound to break when you live in the special needs world

My heart is heavy. A few days ago, driving home from therapy actually, I leaned that one of the (many) children I know, had died. Someone asked me “what happened?” Nothing happened. It was his time. He was on hospice, he was declining, but it hurts. I’m not his family…but I am within his community. …

Your heart is bound to break when you live in the special needs world Read More »