Today was most of what I hoped it would be. A perfectly overcast, gloomy, quiet day (mostly) to myself. A day I wish I could repeat over and over again. The hours went quickly and the day ended as fast as it began. That isn’t usually how my days go. They are usually filled with …
My son is sick. His birthday is in exactly 2 weeks. He’ll be 3 years old. (And no, I’m not okay with it.) He is the unfortunate recipient of a horrible genetic disorder, along with his older brother, gifted by none other than myself. The way genetic disorders work in families, each member can experience …
Loss. It’s the only thing that we really can’t convince ourselves doesn’t exist, that it isn’t real. Pain can be subjective. We can downplay it, ignore it, tell ourselves that “its not that bad”, or even “well, maybe it just didn’t even happen”. We can doubt our feelings, our experiences, or listen to the words …
Covid has stolen a lot from all of us. Directly or indirectly, it’s messed with all of our lives. In an enormous way. A few weeks ago, someone close to me lost their husband to it. One of my best friends is now struggling and fighting for her life because of it. She is in …
My heart is heavy. A few days ago, driving home from therapy actually, I leaned that one of the (many) children I know, had died. Someone asked me “what happened?” Nothing happened. It was his time. He was on hospice, he was declining, but it hurts. I’m not his family…but I am within his community. …
Your heart is bound to break when you live in the special needs world Read More »
The therapists in my life, both mine and my kids, I consider to be an extension of our family. I’ve been with my therapist for 6 years, and all of our other therapists for my kids (PT, OT, speech, etc) have been in our lives for about 4 years now, since my oldest son started …
I didn’t know what to say, so I didn’t say anything Read More »