muscular dystrophy

The travel home day

We are flying home today. I’m actually sitting on the plane right now writing this. To be honest, I’m dreading going home. (Not to mention the covid fear induced panic attack in the airport. 😞 ) I’m double masked, obsessively sanitizing and giving a slight evil glare to anyone who even considers coughing near me, …

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Your heart is bound to break when you live in the special needs world

My heart is heavy. A few days ago, driving home from therapy actually, I leaned that one of the (many) children I know, had died. Someone asked me “what happened?” Nothing happened. It was his time. He was on hospice, he was declining, but it hurts. I’m not his family…but I am within his community. …

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Sometimes things just suck, and there’s nothing you can do.

As much as I wish I could successfully ignore things, as much as I wish I could just…wish the pain away, sometimes you just can’t. Sometimes shit just sucks and there’s really not much anyone can do about it. That’s where I’m at now. Right now in my life, shit just plain old sucks. And …

Sometimes things just suck, and there’s nothing you can do. Read More »