Well, we’re here. The day I’ve been dreading for, really I guess about 10 years now. Later this morning, I am going to see my therapist for the last time. I reached out last week and asked if I could come in today (I was “allowed” 2 more appointments). ——— Honestly, as I started writing […]
Yesterday, Atlas turned 2 years old. And while normally birthdays hold a really heavy weight for me personally, the simultaneous joy and grief that comes with birthdays was vastly overshadowed by another kind of grief yesterday altogether. Casey, my best girl doggo ever (a Havanese), turned 17 on October 11th. But yesterday morning she had
Waiting for the end Read More »
DISNEY WORLD!!!!!! Well, kind of. Let’s back up. 24 hours ago, we woke up and drove the 2 hour drive to the airport. We got the kids up at 4:30am to leave at 5. They thought we were going to a doctor appointment, a lot of their doctors are 2 hours away and we frequently
24 hours from now, if everything goes as planned today and the kids get cleared from their doctor this afternoon…we will finally reveal our super amazing surprise. My day couldn’t possibly busier today, and I’m absolutely freaking out about how stressed I am. But I suppose it’s the good kind of stress? I don’t know.
Excitement or anxiety Read More »
Remember that bad day I wrote about? Well, worst fears have in fact been confirmed. Unfortunately, I write this blog post from the (un)comfort of a hospital room, once again. My 7 year old has been admitted for left lower lobe pneumonia as well as aspiration pneumonia. Not exactly how I wanted to spend my
Another hospital saga Read More »
As always, nothing about my life has been typical or uneventful. My doctor appointment on Friday left her feeling nothing short of baffled and confused. With the knowledge that I do not yet have insurance until September 1st, she only ran the most immediately necessary tests. So a bunch of labs and chest X-rays later…apparently
It’s always something Read More »
Fear looks and feels a lot different for everyone. Sometimes it’s manageable, sometimes it overtakes you and paralyzes you, it doesn’t always make sense, or it’s there to keep you safe. For me, I live in fear for my kids and their health. Since me and my 3 boys share a rather devastating and largely
Fighting through the fears Read More »
Yesterday was a long, long day. We had our regularly scheduled visit with our favorite doctor. Every few months, we go to see the neuromuscular doctor who has been basically in charge of our care for years now and was the one who initiated sending us to the NIH. These visits are always intense, as
It doesn’t matter why. It just is. Read More »
When I woke up this morning, I was expecting it to be a normal day. A normal Sunday. And for the most part…it was. Except for the parts that weren’t. One of my first thoughts upon awakening was “oh shit, it’s Father’s Day”. We woke up later than normal, 6:24am rather than 6:00am. That meant
The wounds of trauma Read More »
This whole summer break thing is just so not it. It’s been a week. And we’re all going insane. Having 3 kids not only just with physical disabilities…but also with 2 of them having pretty severe ADHD amongst other things…phew. It’s kicking my ass. Last night at like 8:55pm, I half jokingly, but half not,
Burnout, but no breaks in sight. Read More »
