genetic disorder

When 3 turns 4

Today, my baby, who is now really my middle child (as of 7 weeks ago), turns 4. My little Phoenix Leo. A name that absolutely demands strength. A boy who’s body betrays him. Weak muscles and plagued with fatigue. But that’s the only weak thing about him. This boy is fierce. He is strong willed. …

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Freedom looks different on all of us

Here in good ole America, it’s the 4th of July. A day you celebrate independence and freedom…or whatever. Current thoughts on that aside…yesterday, I was watching my son and really thinking about what that means, what independence means. I was watching my 5 year old son play outside yesterday and he started getting frustrated and …

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