In need of a miracle, and the actual week from hell

It’s been kind of the week from hell, and while I normally don’t love Fridays, I am SO glad that we’re finally here.

The week started off with my oldest son getting an EEG. Then he had an appointment with the sleep medicine doctor, and he’ll be getting a sleep study soon.

The next day, my 4 year old decided a head injury was in order, so off to urgent care we went. They glued his head back shut, although looking at it now a few days later, a stitch definitely would’ve been a better choice. It’s definitely still quite open a few days later.

The next day, he had his annual cardio appointment. Because of our genetic disorder, we’re all a high risk for cardiomyopathy, so all the kids are closely followed. Unlike my 6 year old, his heart is in pretty good shape so far. Which is a big relief.

So, yeah. It’s been a week literally full of appointments, all while keeping up with our therapy schedule, where we have multiple hours of therapy every single day.

This week has been exhausting, and I haven’t had a moment to slow down once.

Normally, I dislike Fridays because there’s no appointments, no where to go, and the days tend to drag on. But today, I’m here for it. We could all use a day of no fixed schedule.

Between all of the appointments, my sons extra fun behavior, and adjusting to my husband being back…it’s literally just been an awful week.

It has been great having him be home, but things are really hard right now.

I can’t even find the words to describe how absolutely FUCKED we are financially. We have nothing, all our credit cards are maxed out, and I have not been able to pay any bills this month. That’s what happens when you don’t have any income for over 6 weeks now.

I keep waiting on a miracle to happen. But it isn’t going to.

And the strain that it is putting on our marriage is not a good one.

If you’re the praying type, pray that I get a miracle. Because otherwise, I just don’t see a way out of this right now.

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