Yesterday, I gave myself the seemingly very impossible task of completing the 60 pages of paperwork that was sent to me by the NIH to complete. Well, I did it. I buckled down and focused, and I did all 60 pages of it. I kicked my husband and kids out so I could focus, and […]
Accepting what is, even if it sucks. Read More »
I don’t think I’ve ever gone more than 2 days without writing…so I figured I’d force myself to sit down right now and do it. It’s been a chaotic week. At no point, has it gotten any easier. I feel like I’m at my breaking point. I spent most of today in appointments and doctors
Always a fire to put out Read More »
The holidays are hard. Well, for some of us, anyway. For me, they’re quite hard. Thanksgiving is associated with a lot of trauma for me. It was the beginning of what would become…another version of hell for me. Growing up the way I did, in a household full of abuse and fear and trauma…I craved
I did my best today Read More »
Well, yesterday went about as well and true to form as it could have possibly gone. I am happy to report that both of my children were EXACTLY, 100% themselves yesterday when their therapist came to our house. Chaos ensued as promised, and boy did she get a glimpse into the reality of my every
When things go exactly as expected, and the unknowns of the future Read More »
If you’ve ever lived a life of chaos…of noise and people and more noise and just LITERALLY complete and utter chaos…you might feel like I do, and be hesitant to welcome people into your home. Well, a few days ago, I received this email from my kids therapist. So…a therapist I’ve known for a relatively
Welcome to the chaos Read More »
I’ve never been happier to see a Monday than I am today. For some reason, it’s just felt like Monday couldn’t come fast enough this week. Monday night is my therapy night, and sometimes it just really feels like that’s all I have. Like it’s the only thing that gets me through the week. I’ve
Monday isn’t the enemy, and a bad gut feeling. Read More »
This morning started off in very atypical fashion…but will now become part of our weekly routine. A few weeks ago, we switched my 6 year old son’s therapist. We’ve been trying to get in with this particular therapist for a little while, but when we were first looking, she didn’t have any openings. Fast forward
Support looks different for everyone Read More »
When I woke up yesterday, I was so excited it was Friday. As you may or may not know by now, Friday is the one day of the week that I don’t have any standing appointments. Often, I’ll schedule doctor appointments on Fridays, but not always. My excitement for my “quieter than normal day” quickly
Sick babies, cozy cuddles, and worst case scenarios. Read More »
Today was harder than it should’ve been. I’ll detail that more tomorrow, I promise. But today was hard. I got through it…we got through it. It didn’t end it tragedy. It didn’t end tragically. Yet, I’m still struggling. Today was triggering. My son’s health was seriously jeopardized. He’s fine. It’s fine. He’s safe. But I
Everything is fragile. Read More »
After nearly 6 hours of driving, an hour and a half of actual face time with the doctor, and 1 and a half blowouts…we made it home late on Tuesday night, with probably more questions than answers. It boils down to “it’s complicated”. There’s no clear path when it comes to our family and our
“It’s complicated” Read More »
