genetic disorder

One week away, and a brain full of feelings

We are officially one week away from our big important trip to the NIH. That pretty much means that now is the time to stop procrastinating, and put it into focus. I have to pack. And prepare. Mentally and physically. I’ve never flown with 3 kids before. Actually, I’ve only ever flown with one kid

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A “break”, but not really. And the burnout is real.

Today started off rather unexpectedly, but it turned out to be exactly what I needed to happen. Every single week day consists of MULTIPLE appointments for me to take my 3 kids to. Usually, I drop my oldest son off at school, immediately take one or both of the other 2 to therapy (PT or

A “break”, but not really. And the burnout is real. Read More »

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