Yesterday was a whole day. All of them seem to be lately. As always for a Monday, it ended with therapy. For some reason I was more nervous than normal going into it, but I think that’s just because I was feeling some pretty intense things, and that doesn’t always translate super well. We talked […]
Unnecessary self hatred, and worth being loved. Read More »
For the first time since before Christmas, this is a Monday that truly feels like a Monday. Between holidays and the flu and winter storms, Mondays have been weird for a while now. But this morning finally feels…normal. And honestly, I’m happy to see it. It’s a rainy day…my favorite kind of day, and I’m
Running our own race Read More »
This morning is another surgery day. This time, for our 5 year old. It isn’t his first, and he’s more upset about having to be hungry (fast) than of being in the hospital. He’s having his adenoids taken out and his nose cauterized. He can literally never breathe, and we’re hoping this helps. His adenoids
Surgery days are hard Read More »
Yesterday, Phoenix turned 5 years old. I don’t usually recycle words, but I do think I said it best yesterday. To my wild one, the child with more personality than should be allowed to exist in one single body, the most literal and hilarious person I’ve ever met, the child with ZERO filter…and the sweetest
Yesterday, I gave myself the seemingly very impossible task of completing the 60 pages of paperwork that was sent to me by the NIH to complete. Well, I did it. I buckled down and focused, and I did all 60 pages of it. I kicked my husband and kids out so I could focus, and
Accepting what is, even if it sucks. Read More »
Last night before bed, I boldly proclaimed to my husband that I’m not doing a single thing until the 60 pages worth of paper work that was sent to me is completely filled out and sent off. 2 weeks ago, I got a call and was told that our family was officially accepted by the
Unexpected triggers, but getting it done anyway Read More »
I don’t think I’ve ever gone more than 2 days without writing…so I figured I’d force myself to sit down right now and do it. It’s been a chaotic week. At no point, has it gotten any easier. I feel like I’m at my breaking point. I spent most of today in appointments and doctors
Always a fire to put out Read More »
Well, for the night I had last night, I woke up in a surprisingly good mood. Like, it’s actually kind of shocking, and I’m super confused by it, but….a win is a win? Yesterday was a little bit hard, but it ended with therapy, which went really well. It was mostly just me talking for
Yeah, I got this. And all the tiny wins. Read More »
Today is the day I’ve been dreading. The day we take our 12 month old to Dallas for his super big important emergency appointment to see our neuromuscular doctor. She’s worked with our family for a good few years, and she’s pretty much the head doctor in their care. Remember, we have a super weird
They are worth the hard. Read More »
I don’t like this picture. But it’s also my favorite. It’s a telling picture, to say the least. It’s not an attractive photo of me by any means, I look exhausted at best. But it’s one that means the most to me. What you can’t see from this angle is his little hand. He’s reaching
Love is the most healing force on the planet. Read More »
