Month: May 2022


I don’t have the words to express how I’m feeling right now, and honestly I feel like I’m wrong for even feeling them. I just got home from therapy, and, as you may or may not know, that’s been tumultuous lately. She’s moving me from twice a week to once a week. I’m going to …

Abandoned. Read More »

When strength is the only choice you have

Right now, we are on our way to the childrens hospital 2 hours from us where both of my children are regularly seen. They have their “big”appointment today, neuromuscular. This is the doctor who diagnosed all of us and has been sort of the leader in their care. She’s the top neuromuscular doctor in the …

When strength is the only choice you have Read More »