March 31st. The last day before April. Better known as my husbands birthday. I woke up today wanting to die slightly more than usual. Which, for this time of year, is a whole freaking lot. I woke up alone, in a hospital room, on a hard, lumpy pull out bed, where my son slept 4 […]
It’s day 4 of my 7 year old son being in the hospital with respiratory failure due to a severe asthma exacerbation coupled with muscular dystrophy. I’ve been there for every second of it. He hasn’t been stable. I couldn’t leave. I wouldn’t leave. Tonight, I came home. I needed to shower. And sleep. And
My 7 year old son has been in the hospital since Tuesday afternoon dealing with a “severe asthma exacerbation”. (Picture of my actual life below) His lungs got extremely clamped down, and took their sweet time to make even the smallest amount of progress. It’s been exhausting. He very quickly went from room air, to
Hospital stays and exhaustion. Read More »
Effective communication drastically reduces the occurrence of being surprised and confused by another persons actions. That’s the situation I found myself in last night. My husband and I drove to therapy together, as we have been since being down to only one car. Both of our therapists are in the same office complex, so he’ll
Nothing and everything Read More »
This morning started off basically as badly as it could have. My body is so far and beyond physically exhausted, last night all I wanted to do was go to sleep. Going to sleep before midnight and way too many drinks is a nightly occurrence for me. Yet last night, it was 10pm, I didn’t
When you just need a minute Read More »
I’m drowning faster than I am able to pop my head up above the surface to catch my breath. It all keeps piling on. Like weights added to my feet. I’m trying my best to keep afloat. Get my gasps of air whenever the opportunity presents itself. But it seems like life is working against
Sinking or swimming Read More »
Well…we’re here! We’re officially in the “my brain can’t handle life anymore and I’ll probably ruin any and everything around me” mode. My birth son’s 10th birthday is exactly 2 weeks away. The service for my husbands dad who passed away a few weeks ago happens to be the same day. Life is so impossible
Music and dysfunction Read More »
“I’m going to say something shitty to you now, and I apologize for that” *Takes half a second….realizes that it’s not worth it…I don’t need to say something that would hurt him.* Oh boy. Do you ever have those moments…where you know EXACTLY just what to say, just what feels so fucking correct and accurate……but
Rolling with the punches…kind of Read More »
You know you’re in a weird place in life when you’re halfway wishing the weekend away so it can be Monday. That’s me today…for a few reasons. First of all…it’s finally a therapy night after a few weeks off while she was on vacation. And in the time she was gone, oh boy did a
Never a dull moment Read More »
I feel like I just can’t anymore. And that’s hard. It’s a hard pill to swallow. I feel like can’t do it. I can’t be the person everyone needs me to be. I can’t go to sleep because the nightmares terrify me. Or I’m (accurately so) afraid to fall asleep, because I know damn well
I can’t anymore……..can I? Read More »
